Tuesday, June 30, 2009

Baldy-boy


Just a quick update, here is a picture of Isis with his new do.

Friday, June 26, 2009

Aven's condition

Yesterday, Avendesora had her eye surgery and it went great. The doctors said she'll need close supervision for the next few weeks and the probably every month afterwards until she's a few years old. The head ultrasound doctor wanted to talk to Brandy and I as we were on our way out of the waiting room to go home. We told him we had some time and he had us meet him in a consultation room. He told us that there is two parts of brain matter, white and gray. The gray matter is used for thinking and high thought processes and the white is for muscle movement and control. Aven's latest ultrasound shows several cysts on her white matter. The doctor told us that this usually leads to cerebral palsy. He told us with the way the ultrasound looked it was a good chance that Aven will have this disease. We were told that the best case scenario would be that she would only be effected in her legs and not have any learning problems. Worst case is that she would not be able to learn in a meaningful way and her whole body would be effected. We have already had numerous miracles with our daughter and we are praying for another one, that our baby girl can grow up and have a productive life and be able to accomplish amazing things. Brandy is going down tomorrow and I'll try to remember to post anything new that she discovers. Thanks for everything everybody has done, we really appreciate it.

The Mondys

p.s. Isis decided to give himself a haircut this morning and is now almost completely bald. Mom wasn't happy.

Wednesday, June 24, 2009

So Aven has a condition called ROP - Reinopathy of Premeies. Here is a link to learn a bit on that. This is treatable and she will have corrective lazer eye surgery on Friday. Please pray that she rest well and heals well, and that the doctors have the right mindset on Friday.
http://www.tsbvi.edu/Outreach/seehear/winter98/rop.htm

Isis is doing good. If any of you remember he smashed his left big toe in the door a month or so ago. Well the nail has finally fallen off and he is growning the new one. Could take months according to the doctor.

Brandy is stressing about her leave at work, more cause she is a control freak and worries about the person that will do her duties while she is out.

Ethan is working full time at the University - and preping for next semester.

Tuesday, June 23, 2009

Thursday, June 11, 2009

Life continues to move forward




Ethan is still working at the University IT department and enjoying it. The IT guys have joined a disc golf league, they had their first "match" or game the other day and Ethan ended up 5 over par.




Our house finally has a partial yard.




I am trying to see Aven as much as possible and have a thing of the jealous bug for all the mommies in the last month that have had their baby after me and already have their babies home.




Aven is continuing to get bigger and has had a lot of changes in her life since Sunday. She is now 3 pounds 1 oz, she is starting to wear clothes, and they have introduce her to a pacifier. She will use the pacifier to learn to suck. All the clothes are to large for her and she really hates her CPAP. The CPAP is your normal Oxygen tube with the prongs, but it irritates her nose, and helps to open her lungs, she also does not like the physical therapist that comes in twice a week. The physical therapist helps her to keep her tone, and Aven thinks that they need to take a flying leap.




Friday, June 5, 2009

New addition

So another new addition to the Mondy household

We got dog - half american bull dog half mastiff - very sweet

Megabyte

Wednesday, June 3, 2009

So just a quick up date - Aven is 3 lbs. !!!!!!!!

Isis played in the mud yesterday - and other than that life is the same.

Monday, June 1, 2009

My sister Toni and her husband Doug had their baby boy today! His name is Lincoln Nicholas Nelson. He weighs 7 lbs. 12 ounces. Compared to our 2 lb, 12 oz baby he is a monster. Mom and Lincoln are doing great.


Way to go Toni, he looks just like Jack
So Aven is up to 2 lbs and 12 oz. She is conitinuing to get bigger and now we can actually see the difference. She is going to be mointored weekly for ROP - which is detached retinas, she is highly suseptable due to her agen and the amount of oxygen that she is on. Right now there are no concerns, if this does become a concern, she will have lazer eye surgery to help in the correction. Isis made a trip to the ER on Sunday. Two weeks ago he got his big left toe smashed in the door, and Sunday he snagged it and ripped it mostly off. The doctors want us to keep it on as long as possible to "teach" the new nail where to grow so we are trying to keep it clean, dry and protected.